Occupational participation of caregivers of children and adolescents with attention- deficit and hyperactivity disorder
A scoping review
DOI:
https://doi.org/10.25214/25907816.1784Keywords:
attention deficit hyperactivity disorder, caregivers, work, social participation, recreational activitiesAbstract
Caring for a child with attention-deficit and hyperactivity disorder can have consequences in different occupational areas. This scoping review aimed at understanding the effects on social participation, work, and leisure of caregivers of children and adolescents with this diagnosis. A total of 22 articles published between 2003 and 2023, in Spanish and English, and indexed in the databases PubMed, Scopus, and Springer were reviewed. The findings show that caregivers experience impairment in the occupational areas studied. In working life, this includes leaving work or changing shifts. Social participation is affected, including reduced engagement in gatherings with friends, family, or outings outside the home. Leisure or pleasurable activities also decline, due to the time demands of caregiving and difficulties associated with doing those activities with children. The review concludes that the impact on occupational areas is diverse and relevant. Occupational therapy can play a valuable role in preventing and intervening in these situations.
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References
American Occupational Therapy Association [AOTA]. (2022). Occupational therapy practice framework: Domain and process - Fourth edition. American Journal of Occupational Therapy, 74(2), 7412410010p1–7412410010p87. https://doi.org/10.5014/ajot.2020.74S2001
Araujo, E. A., Pfiffner, L. J. y Haack, L. M. (2017). Emotional, social and cultural experiences of Latino children with ADHD symptoms and their families. Journal of Child and Family Studies, 26(12), 3512-3524. https://doi.org/10.1007/s10826-017-0842-1
Arksey, H. y O’Malley, L. (2005). Estudios de alcance: hacia un marco metodológico. International Journal of Social Research Methodology, 8(1), 19-32. https://doi.org/10.1080/1364557032000119616
Asociación Americana de Psiquiatría. (2014). Manual diagnóstico y estadístico de los trastornos mentales. 5ª edición. Asociación Americana de Psiquiatría.
Barkley, R. A. (2020). Taking charge of ADHD: The complete, authoritative guide for parents. Guilford Publication.
Bussing, R., Koro-Ljungberg, M., Gurnani, T., Garvan, C., Mason, D. M., Noguchi, K., y Albarracín, D. (2015). Willingness to use ADHD self-management: Mixed methods study of perceptions by adolescents and parents. Journal of Child and Family Studies, 25(2), 562-573. https://doi.org/10.1007/s10826-015-0241-4
Callander, E. J., Allele, F., Roberts, H., Guinea, W. y Lindsay, D. (2016). The effect of childhood ADD/ADHD on parental workforce participation. Journal of Attention Disorders, 23 (5), 487-492. https://doi.org/10.1177/1087054716680076
Chacko, A. y Scavenius, C. (2017). Bending the curve: a community-based behavioral parent training model to address ADHD-related concerns in the voluntary sector in Denmark. Journal of Abnormal Child Psychology, 46(3), 505-517. https://doi.org/10.1007/s10802-017-0310-9
Ching’oma, C. D., Mkoka, D. A., Ambikile, J. S. y Iseselo, M. K. (2022). Experiences and challenges of parents caring for children with attention-deficit hyperactivity disorder: a qualitative study in Dar es Salaam, Tanzania. PLOS ONE, 17(8), e0267773. https://doi.org/10.1371/journal.pone.0267773
Coghill, D., Soutullo, C., d’Aubuisson, C., Preuss, U. W., Lindback, T., Silverberg, M. y Buitelaar, J. K. (2008). Impact of attention-deficit/hyperactivity disorder on the patient and family: results from a European survey. Child and Adolescent Psychiatry and Mental Health, 2(31). https://doi.org/10.1186/1753-2000-2-31
Federación Mundial de Terapeutas Ocupacionales. (2012). About occupational therapy. WFOT. https://wfot.org/about/about-occupational-therapy
Fleck, K., Jacob, C., Philipsen, A., Matthies, S., Graf, E., Hennighausen, K., Haack-Dees, B., Weyers, P., Warnke, A., Rösler, M., Retz, W., Von Gontard, A., Hänig, S., Freitag, C. M., Sobanski, E., Schumacher-Stien, M., Poustka, L., Bliznak, L., Becker, K., Holtmann, M., Colla, M., Gentschow, L., Kappel, V., Jaite, C. y Jans, T. (2015). Child impact on family functioning: a multivariate analysis in multiplex families with children and mothers both affected by attention-deficit/hyperactivity disorder (ADHD). ADHD Attention Deficit and Hyperactivity Disorders, 7(3), 211-223. https://doi.org/10.1007/s12402-014-0164-8
Fridman, M., Banaschewski, T., Sichirica, V., Quintero, J., Erder, M. y Chen, K. (2016). Factors associated with caregiver burden among pharmacotherapy-treated children/adolescents with ADHD in the Caregiver Perspective on Pediatric ADHD survey in Europe Neuropsychiatric Disease and Treatment, 13, 373-386 https://doi.org/10.2147/NDT.S121391
Gupte-Singh, K., Singh, R. R. y Lawson, K. A. (2017). Economic burden of attention-deficit/hyperactivity disorder among pediatric patients in the United States. Value in Health, 20(4), 602–609. https://doi.org/10.1016/j.jval.2017.01.007
Hill, E. L., Jones, A. Y., Lang, J., Yarker, J. y Patterson, A. B. (2014). Employment experiences of parents of children with ASD or ADHD: an exploratory study. International Journal of Developmental Disabilities, 61(3), 166-176. https://doi.org/10.1179/2047387714y.0000000037
Hiscock, H., Sciberras, E., Mensah, F., Gerner, B., Efron, D., Khano, S. y Oberklaid, F. (2015). Impact of a behavioral sleep intervention on symptoms and sleep in children with attention deficit hyperactivity disorder, and parental mental health: randomised controlled trial. BMJ, 350, h68. https://doi.org/10.1136/bmj.h68
Lai, K.Y.C., Ma, J. L.C. y Xia, L. L. L. (2018). Multifamily therapy for children with ADHD in Hong Kong: the different impacts on fathers and mothers. Journal of Attention Disorders, 25(1), 115-123. https://doi.org/10.1177/1087054718756195
López, J., Rodríguez, L., Sacristán, A., López, M., Garrido, M., Andrés de Llano, J., Martínez, M. y Camina, A. (2021). Calidad de vida en el trastorno por déficit de atención con hiperactividad: percepción de padres e hijos. Pediatría Atención Primaria, 23(89), e1-e9.
Montiel Nava, C., Montiel Barbero, I. y Pena, J., (2005). Clima familiar en el trastorno por déficit de atención-hiperactividad. Psicología Conductual, 13(2), 297–310.
Noe, L. y Hankin, C. (2001). PMH10: Health outcomes of childhood attention deficit/hyperactivity disorder (ADHD): Health care use and work status of caregivers. Value in Health, 4(2), 142-143.
O’Brien, K. D., Sauber, E., Merson, E. S. y Chronis-Tuscano, A. (2016). To work or not to work? Mothers of children with ADHD. Journal of Career Development, 44(3), 239-250. https://doi.org/10.1177/0894845316646219
Orellana, C. (2017). CIE-11 y TDAH (I parte). Fundación CADAH. https://www.fundacioncadah.org/web/articulo/cie-11-y-tdah.html
Page, M. J., McKenzie, J. E., Bossuyt, P. M, Boutron, I., Hoffmann, T. C., Mulrow, C. D., Shamseer, L., Tetzlaff, J. M., Akl, E. A., Brennan, S. E., Chou, R., Glanville, J., Grimshaw, J. M., Hróbjartsson, A., Lalu, M. M., Li, T., Loder, E.W., Mayo-Wilson, E., McDonald, S.,… McGuinness, L. (2021). The PRISMA 2020 statement: an updated guideline for reporting systematic reviews. BMJ, 372(71). https://doi.org/10.1136/bmj.n71
Peasgood, T., Bhardwaj, A., Brazier, J., Biggs, K., Coghill, D., Daley, D., Cooper, C., De Silva, C., Harpin, V., Hodgkins, P., Nadkarni, A., Setyawan, J. y Sonuga-Barke, E. J. (2020). What is the health and well-being burden for parents living with a child with ADHD in the United Kingdom? Journal of Attention Disorders, 25(14), 1962-1976. https://doi.org/10.1177/1087054720925899
Perea, J., Sánchez, L., Calzado, M. y Villanueva, E. (2009). Apoyo social y carga de la persona cuidadora en una unidad de salud mental infantil. Índex de Enfermería, 18(3), 166-170.
Presentación-Herrero, M. J., García-Castellar, R., Miranda-Casas, A., Siegenthaler-Hierro, R. y Jara-Jiménez, P. (2006). Impacto familiar de los niños con trastorno por déficit de atención con hiperactividad subtipo combinado: efecto de los problemas de conducta asociados. Revista de Neurología, 42(3), 137-143. https://doi.org/10.33588/rn.4203.2005170
Rockhill, C. M., Violette, H., Stoep, A. V., Grover, S. A. y Myers, K. (2013). Caregivers’ distress: Youth with attention-deficit/hyperactivity disorder and comorbid disorders assessed via telemental health. Journal of Child and Adolescent Psychopharmacology, 23(6), 379-385. https://doi.org/10.1089/cap.2013.0019
Sellmaier, C., Leo, M. C., Brennan, E. M., Kendall, J. y Houck, G. M. (2016). Finding fit between work and family responsibilities when caring for children with ADHD diagnoses. Journal of Child and Family Studies, 25(12), 3684-3693. https://doi.org/10.1007/s10826-016-0527-1
Sundarlall, R., Van Der Westhuizen, D. y Fletcher, L. (2016). The functioning and behavior of biological parents of children diagnosed with attention-deficit/hyperactivity disorder, attending the outpatient department at Weskoppies Hospital, Pretoria. South African journal of psychiatry, 22(1), 6.
Tavernard, E. P. de M., Dourado, C. M., Ramo, E. M. L. S., Pontes, F. A. R. y Silva, S. S. da C. (2020). Stress levels of parents of children with and without attention-deficit/hyperactivity disorder. Trends in Psychology, 28(2), 230-248. https://doi.org/10.1007/s43076-020-00012-8
Wehmeier, P. M., Schacht, A. y Barkley, R. A. (2010). Social and emotional impairment in children and adolescents with ADHD and the impact on quality of life. Journal of adolescent health, 46(3), 209–217. https://doi.org/10.1016/j.jadohealth.2009.09.009
Zhao, X., Page, T. J., Altszuler, A. R., Pelham, W. E., Kipp, H., Gnagy, E. M., Coxe, S., Schatz, N. K., Merrill, B. M. y Macphee, F. L. (2019). Family burden of raising a child with ADHD. Journal of Abnormal Child Psychology, 47(8), 1327-1338. https://doi.org/10.1007/s10802-019-00518-5
Zúñiga, C., Burgos, C. y Araujo, E. (2022). Prácticas culturales en la dinámica familiar en niños y niñas con trastorno por déficit de atención con hiperactividad. Revista Perspectivas Sociales, 24(2), 73-94.
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